What Genes Can’t Tell Us
More Mother, Less Detective: Where I’ve Found Grace Without a Diagnosis for My Son
Not knowing happens to all mothers, and to all of us—if we are breathing, we are without escape from things we can’t know.
I Underwent Genetic Testing to Help My Son, and Discovered I Have an Increased Risk of Breast Cancer
What if my son, the boy who has puzzled everyone, has helped to save my life?
Two Black Parents Walk Into a Meeting: On Race, Education, and Our Son’s IEP
I’m not just advocating for a child whose challenges don’t follow a script. I’m also a black mother advocating for my black son in a room full of people who don’t look like us.
“Who Else Has a Son Like Mine?” A Mother Searches for Other Parents Who Lack Medical Answers
How many days had we spent asking the same questions of God or doctors? How long had we wrestled with conditions that didn’t yet exist?
What Keeps Me Up at Night: How Do I Meet My Son’s Needs If I Can’t See Them?
This is where, for me, motherhood divided into ‘Before’ and ‘After.’
Living in the “Yet”: When Genetic Tests Don’t Reveal the Answers You Seek
As a mother, I’ve had to ask myself: What would never getting an answer, or even no longer expecting an answer, look like?
Why We Brought Our Son to the Pediatric Geneticist
Kids are all mystery, and mine are no different, but the unknown has especially marked my son.