One day, Brian would dissolve into the atmosphere and not come back. One day, this room, our home, our love, would no longer be able to contain him.
Brian shattered into a field of light while he was supposed to be teaching Matilda how to ride her bike. The training wheels had just come off, and she was wobbling unsteadily down the alley behind our home. I could see it all clearly through the kitchen window: Brian’s good hand on the small of Matilda’s back, guiding her forward. The glow bleeding through his fingertips, then exploding out, taking his body with it.
Brian and I watched the technician bombard our daughter with invisible light to make her insides glow. Of course we would pay anything. Of course cost was not a question. We would find a way—we always had.
It was not so much a question of what we could afford as it was a question of what we would have left. One day our reservoir would run dry. What we would do then, when we scraped the true unyielding bottom of everything—that still loomed uncertain. I did not have a long-term plan. I did not have a solution except to scrape from one day to the next, stringing together enough in sequence until it hopefully became a life.
“She’s gonna be fine.” Brian said, not taking his eyes off our daughter. “She’s gonna come out of all this okay, right?”
“Yeah,” I said, with enough conviction to answer the big and small of his question. I have had enough training in baseless faith where it has long since become a reflex. “We’re all gonna be just fine.”
*
The clock on Brian’s life did not start in earnest until after Matilda was born. I have since learned that it happens differently for everyone, the disintegration. The condition can lie dormant for decades, or it can roar into debilitating force all at once. Some can live with it to the age of eighty without enduring more than the rare inconvenience. Others can unravel in a burst before they escape their teens.
Through my pregnancy, the flashes were rare enough to still be a footnote. Instead, my fears knotted around the life growing inside of me. Mine and not mine, a new, breakable part of me with a will of its own. I could feel every step of our daughter’s fragile becoming. From the beginning, I wanted her to have the world. From the beginning, I was terrified of what the world would do to her.
Brian was a pillar of care through the whole process. He held my hair back through my morning sickness. He maintained an arsenal of hot compresses and ice packs. He made midnight candy runs and told me over and over again about how our child would conquer the universe. How she would climb mountains without a guide, wrestle alligators with one hand tied behind her back. How she would see the world and grow old and visit us in our cozy Florida retirement home with an entourage of sticky-handed grandchildren.
When Matilda finally came screaming into this world, she seemed every bit as indestructible as Brian had foretold. Her lungs were magnificent engines. The months to come were sleepless, delirious, and somehow, also bliss.
For six months, it all held together. Our child was unpredictable and demanding and an ever-evolving revelation. We fumbled our way forward as a family, exhausted and in a constant state of marvel. Then on a heavy summer night, Matilda’s cries crackled through the baby monitor. Brian rolled off the mattress in a groan of sagging springs. I yawned, blinked the sleep from my eyes. Brian returned with Matilda gurgling in his arms.
“She’s not wet.” He whispered, squatting on the edge of our bed. “I think she was just lonely—”
And that’s when his skin flashed immaterial. Matilda bounced, laughing, onto our mattress as her father dissolved and reassembled in a blinding game of peek-a-boo. Brian came back sweating, breathing heavy. I had to dive to keep Matilda from rolling over the edge of the bed.
At the time, we did not realize this was the start of something new. We assumed it was the usual one-off, the rare firework that I had long since learned to accommodate. But then it happened again during breakfast the next morning, and while he was changing her diaper later that week. We visited the doctor together. I stood in the room with Brian as he was told the news, my hand crinkling the paper on the examination table. We were given the timeline. We were told what to expect. Brian would no longer be allowed to drive a car. He would not be able to hold his daughter unsupervised.
I drove us home with the radio off, telling Brian stories about how we would be okay.
*
After we watched our daughter drift to sleep, the mask affixed to her face like an alien parasite, Brian and I slumped onto a bench outside the operating theater. The break was as clean as they could have hoped. The plastic of the X-ray printout wobbled audibly as the doctor pointed at the fracture, tried to explain why the angle of the broken bone was not as bad as it could have been.
“Wish they could have saved some of that gas for me,” Brian said, wrapping an arm around my shoulder. “It’s been a day.”
“Maybe they can give us whatever Matilda doesn’t use. Like a doggie bag.”
We stared ahead at a white wall, so bright and clean we could almost see our reflections. Quiet for a moment.
“Wanna talk about it?” I broke the silence, turning to face Brian directly. Bruises of fatigue around his eyes, sandpaper stubble on his cheeks. It occurred to me that he might not have been joking about the gas.
“About what?”
“You know.” I extended a pinky.
“Oh, that.” Brian exhaled like he was scraping out his lungs. “Yeah. Not thrilled with that development, to be honest.”
“Anything I can do?”
“No.”
A beat.
“I don’t know if you saw, before, ya know. But Matilda was doing it. Before the crash. She was really riding on her own. The practice paid off.”
Brian shifted up a little in his seat.
“It’s funny. I’m usually out of it when,” he opened and closed his hand in a mimed explosion. “Supernova. But I swear, this time I can remember seeing everything. Like, I don’t know if I’m making it up, if it’s just a trick of the brain. But I feel like I could see her going. On her own.”
The doors at the end of the hall swung open. A man in pale green surgeon’s scrubs walked past, tugging down at the elastic of his gloves.
“Pretty amazing.” I rested my head against his shoulder. “This kid of ours.”
“Yeah.” Brian wrapped an arm around me, leaned back. “You might be onto something there. Might be worth watching, to see how she turns out.”
*
For years, we wrestled with what to tell her. Brian was adamant that Matilda know as little as possible. He saw it as a burden too great to put on her shoulders, the knowledge that her father was gradually falling apart. Me, I thought the truth, told gently, was the only way out. We argued, but in the end, Brian got the final say. It was his body, his story to tell.
I obliged as best I could. When I caught signs of a coming attack—a distant smell of burning ozone, a curious light behind his eyes—I would take her out of the room. I shielded her from having to face the reality unfiltered. I would redirect her attention elsewhere, let her play with my cellphone as a distraction. If she noticed the glow behind my back, if she asked where her dad was, I would stall until Brian inevitably came back.
This worked for about four years. Our precautions paid off, and Brian was careful to make sure I was in the room during their every interaction. He was still coming back intact at this time, and Matilda never asked a question I could not answer.
Then, a lapse. I had just taken Matilda in for a checkup. The air conditioner was on the fritz, I was behind on three different deadlines, and a semi-permanent tension headache had taken up residence at the bridge of my forehead. Matilda had been given a clean bill of health with minimal trauma. Brian was watching TV in the living room when we clattered through the front door. I set Matilda down and told her to show her father her band-aid. She ran across the kitchen tile, padded onto the living room carpet. Brian opened his arms to catch her.
And then he burst apart.
The specks of light scattered through the dim living room. A million tiny suns suspended in the air, radiating their own muted heat. Matilda watched the bits of her father drift all around her, her mouth agape.
For so long, I had dreaded Matilda facing this truth unfiltered, but in the moment, I felt a surreal calm. I walked into the living room just as Brian’s light began to re-converge, each individual point of life slowly drifting back into place.
“Mom?” Matilda grabbed at one of the lights, but it slipped through her stubby fist. “What’s wrong with Dad?”
Brian was here and not here. His body was outlined crisp, but it still blurred in the center. I crouched at Matilda’s side. I pointed at her father, at not her father.
“You see.” One day, Brian would dissolve into the atmosphere and not come back. One day, this room, our home, our love, would no longer be able to contain him. Matilda’s cheek was soft against my own. Her eyes followed the trail of my finger as her father’s body glowed—imperfect, but for now, still here. “You see, we’re made of stars.”
*
Matilda was still unsteady on her feet after the anesthesia wore off. The hospital offered to let us use a wheelchair to bring her back out to the car, but I chose to carry her. The rigid plaster of her cast scraped against my back as she slumped over my shoulder.
Brian followed us out into the parking lot with the bag of antibiotics in hand. The day had whittled away while we were inside the hospital. Sodium street lights flickered yellow. With my daughter pressed close, I grasped through the shrapnel of coins and receipts at the bottom of my purse in search of my keys.
A summer moon scythed against the sky. I could not tell if it was waxing or waning. An airplane blinked incremental progress against the black. The stars were not yet out. Or, I should say, we could not yet see them.
I found the keys and chirped our sedan unlocked. Brian stepped ahead and opened the rear door, helped me ease Matilda into her booster seat. She yawned as the belt fastened shut. A dim smell of burning ozone. Unnatural glints sparking in the centers of my husband’s eyes.
With Matilda secure, with the night young and murky, I prepared for the flash. I readied myself to squint through the blinding, to map the constellations of his dissolution. Once again, I would watch our family come undone. Once again, I would wait for the moment of grace that, however briefly, would pull us back together.
Adam Byko is an MFA candidate and Provost Fellow at the University of Central Florida. His work has appeared in or is forthcoming with The Pinch, the Notre Dame Review, and F(r)iction among other publications. He has not yet seen an alligator in the wild.